Foundation for Ichthyosis and Related Skin Types (FIRST) - Ichthyosis Registry
Eligibility
Individuals and families affected by ichthyosis.
Hours
24/7
Application process
Visit website for information.
Fees
Services free of charge.
Service area
PA
Description
Offers a registry that serves as a central resource to connect individuals with ichthyosis to clinical trials and researchers studying specific ichthyosis types. Can also provide a free genetic diagnosis for most individuals.
Providing organization
Foundation for Ichthyosis and Related Skin Types (FIRST)
Works to improve lives and seek cures for those affected by ichthyosis and related skin types.